ACPA members can join any SIG. To join a SIG, contact the ACPA National Office Team.

22q11.2 Related Disorders

The mission of ACPA’s 22q11.2 Related Disorders SIG is to optimize interdisciplinary care and quality of life of individuals with 22q11.2 related disorders by enhancing networking and educational opportunities for clinicians, researchers and other ACPA members interested in 22q11.2 related disorders.

The SIG’s goal is to promote collaboration of clinical care and research across the US and abroad through networking and education.

2021 Objectives

  1. Offer two virtual SIG forums.
  2. Offer an online webinar for providers regarding 22q11.2 deletion syndrome.
  3. Submit an abstract for ACPA’s 79th Annual Meeting in 2022 for a 22q related session.
  4. Assign 22q SIG members to post a 22q question/case of the month on 22q on the ACPA Online Community to general discussion.
  5. Schedule at least one SIG conference call related to 22q research in a journal club format – assign 2-3 articles for discussion and identify an expert discussion leader. Topics may include Care Coordination, VPD, Care for Adults, Feeding or others.
  6. Submit abstract to the American Academy of Pediatrics (AAP) national meeting (Oct 8-12, 2021) to spread 22q awareness to pediatric colleagues.

Care Coordination

The mission of ACPA’s Care Coordination SIG is to facilitate the highest level of knowledge, professional practice, research, and collaboration in the care of individuals with acquired or congenital cleft or craniofacial anomalies.

The SIG’s goals are to serve as an advocate for care coordination within ACPA; to provide opportunities for professional growth through exchange of ideas, networking, and team care experiences; and to educate ACPA members with interest in Team Coordination, as well as current and evolving state of cleft and craniofacial care and multidisciplinary care coordination.

2022 Objectives

  1. Conduct three Care Coordination SIG discussion forums (two virtual, one in person at the annual meeting in Texas).
  2. Continue growing its mentorship program and match at least three new coordinators with mentors.
  3. Submit at least one abstract for ACPA’s 80th Annual Meeting in 2023.
  4. Continue the facilitation of an active Care Coordination SIG Online Community, with at least two posts per month
  5. Add resources for New Coordinator Tool Kit to folder in SIG Online Community.

Ethics

The mission of the Ethics Special Interest Group of the American Cleft Palate-Craniofacial Association is to optimize ethical care of individuals with cleft and craniofacial conditions by enhancing educational and networking opportunities for ACPA members interested in ethics.

The SIG’s goals are to serve as an advocate for the ethical care of individuals with cleft and craniofacial conditions; and to foster discussion and provide education on ethical issues that arise in caring for individuals with cleft and craniofacial conditions.

2021 Objectives

  1. Hold a two Virtual SIG Discussion Forums.
  2. Submit ethics-related abstracts to ACPA’s 79th Annual Meeting in 2022.
  3. Assign members of the Ethics SIG to post at least once a month on the Ethics SIG on the ACPA Online Community.
  4. Offer an online webinar on ethics related to cleft care.
  5. Hold at least one Journal Club conference call, discussing 1-2 articles or AAP ethics policies.

Global Care

The mission of the Global Care Special Interest Group of the American Cleft Palate-Craniofacial Association is to optimize the care for individuals with cleft and craniofacial conditions globally by enhancing educational and networking opportunities for international members and providing assistance in volunteer global cleft/craniofacial care.

The SIG’s goals are to improve sustainability, mentoring, and quality of international cleft work; and grow ACPA’s international membership through increased international member value.

2022 Objectives

  1. Survey ACPA members concerning international membership and international cleft work.
  2. Hold three virtual meetings.
  3. Prepare abstract(s) for the ACPA’s 80th Annual Meeting in 2023.

Mental Health/Psychosocial

The mission of the Mental Health/Psychosocial Special Interest Group of the American Cleft Palate-Craniofacial Association is to optimize the coordination of care for individuals with cleft and craniofacial conditions by enhancing educational and networking opportunities for psychologists, counselors, social workers, and other ACPA members interested in mental health and psychosocial care.

The SIG’s goals are to provide opportunities for professional growth through network and discussion; and to serve as an advocate for mental health care within ACPA.

2022 Objectives

  1. Hold 2 virtual SIG Discussion Forums.
  2. Hold 1 live SIG Discussion Forum at ACPA Annual Meeting
  3. Submit abstracts for ACPA’s 80th Annual Meeting in 2023.
  4. Finalize adoption of the Americleft psychosocial protocol as a recommended approach to standardized screening.  Disseminate recommendations to teams.
  5. Publish Bi-annual Newsletter