The following presenters have disclosures noted below, with eligible organizations. No mitigation necessary.
Financial Disclosures | List any non-financial disclosures relevant to you | ||
Fereshteh | Aalamifar | I am shareholder and executive officer at PediaMetrix Inc. | |
Mamdouh | AboulHassan | Some of the cases were done at cleft centre sponsored ny smiletrain, although smiletrain did not fund the research they funded only the cost of operations as their routine | |
Lee | Alkureishi | Investor, immersive touch inc. | |
Karthik | Balakrishnan | Textbook royalties from Springer, Inc., for “Evidence Based Management of Head and Neck Vascular Anomalies” | |
Suely | Barros | Smile Train Inc. Financial support for the purchase of milk formulas for patients who needed them. | |
Adriane | Baylis | Employee of Nationwide Children’s Hospital and The Ohio State University College of Medicine; Paid Advisory Council Member for Educational Testing Services Praxis Exam; NIH Grant funding to Nationwide Children’s Hospital | ACPA Board Member, Vice President-Elect ACPA 2022 Program Chair |
Hugh | Brewster | I am the Executive Director of Transforming Faces, an NGO that was interviewed for this project. | |
Stefan | Cano | Stefan Cano is co-owner of Modus Outcomes. | |
Kathy | Chapman | 1) Grant funding from the NIH-NIDCR: R01 grant funded by the NIH-NIDCR: A comparative effectiveness study of speech and surgical treatments using a cleft palate registry/research network. 2) Book royalties: Hardin-Jones, M., Chapman, K. L. & Scherer, N. (2015). A Parent’s Guide to Early Intervention for Toddlers with Cleft Palate. Woodbine Publishing. |
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Liana | Cheung | Center for Human Appearance Grant; provided funding for project associated with submitted abstract #3078 – Electronic Clinical Integration of Cleft-Q, a Patient Reported Outcome Instrument, in our Multidisciplinary Cleft Care Workflow | |
Catherine | Crowley | Member of the Smile Train Global Medical Advisory Board | |
Caitlin | Cummings | -Employee of Nationwide Children’s Hospital -Member of NIH-funded research team | |
Monica | DomÃnguez MartÃnez | Dr. Monica Dominguez is an employee of Smile Train. | |
Paige | Ellis | A grant for materials and participant cost was provided by the graduate college at Arizona State University. | |
Brenda | Fetter | Employee of Children’s Mercy Hospital | |
Ingrid | Ganske | Board Member, The Foundation for Faces of Children, nonprofit organization supporting children with facial differences and their families. | |
Mary | Hardin-Jones | 1) Hardin-Jones Book Royalties: Cleft Palate Speech- 4th ed., The Clinician’s Guide to Treating Cleft Palate Speech- 2nd ed., Children with Cleft Lip and Palate: A Parent’s Guide to Early Speech-Language Development and Treatment 2) Grant support from NIH-NIDCR | Member, American Speech-Language-Hearing Association Member American Cleft Palate-Craniofacial Association |
Ethylin | Jabs | I am a member of the Moebius Syndrome International Society Scientific Advisory Board. The Moebius Syndrome Foundation notifies their membership about our research studies. I have participated in giving presentations to members of the Moebius Syndrome Foundation about the genetics of Moebius syndrome. I do not have any financial disclosures relevant to this submitted abstract. | |
Cristin | Kearns | Dr. Kearns provided consulting services for Milliman Inc., a subcontractor with the California Department of Managed Health Care between 2019-2020. | |
Richard | Kirschner | 1) Royalties from edited book, Comprehensive Cleft Care (Thieme). 2) Royalties from edited book, Comprehensive Cleft Care Family Edition (Taylor and Francis). 3) President, Magical Moments Foundation. |
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Anne | Klassen | Co-developer of QPortfolio series of PROMS (e.g., CLEFT-Q), which generate royalty income when used in a for-profit clinical trial. | |
Can | Kocabalkanli | PediaMetrix Inc. is my employer. | |
Angelo | Leto Barone | Co-Founder and owner of ReconstratA, a medical device company that owns the patent and produces a device for auricular reconstruction. | Founder and President of Reconstruct Together, a non for profit that funds reconstructive surgery procedure in underprivileged areas. |
Joseph | Losee | Receives textbook royalties from Elsiever and Theime, for Comprehensive Cleft Care, Edition 1 and 2, and Pediatric Plastic Surgery, Edition 3 and 4 |
President of the American Society of Plastic Surgeons. |
Lauren | Madhoun | Salary from Nationwide Children’s Hospital and The Ohio State University College of Medicine | |
Felicity | Mehendale | I’m not sure any of these are relevant, but am listing my institutional + professional roles Global Cleft Lip and Palate Research Programme Lead Global Health Research Centre, University of Edinburgh President Craniofacial Society of Great Britain and Ireland President International Confederation of Cleft Lip & Palate & Related Craniofacial Anomalies Chair Cleft 2022 Member Smile Train Global Medical Advisory Board Chair Smile Train Research and Innovation Advisory Council | |
Felicity | Mehendale | I’m not sure any of these are relevant, but am listing my institutional + professional roles Global Cleft Lip and Palate Research Programme Lead Global Health Research Centre, University of Edinburgh President Craniofacial Society of Great Britain and Ireland President International Confederation of Cleft Lip & Palate & Related Craniofacial Anomalies Chair Cleft 2022 Member Smile Train Global Medical Advisory Board Chair Smile Train Research and Innovation Advisory Council | |
Amy | Morgan | Co-owner of Verboso, LLC | ACPA member and ASHA SIG 5 member |
John | Munday | I am an employee at Nationwide Children’s Hospital | |
Ellen | Ortega-Moore | Salaried employee at Texas Children’s Hospital in Houston, TX | Member of ASHA Special Interest Group 5—Craniofacial and Velopharyngeal Disorders Member of the Professional Development Committee of ASHA SIG 5 |
Pravin | Patel | Immersive Touch Inc., Chicago, IL, Stock | |
Kaylee | Paulsgrove | I have been employed by Seattle Children’s Hospital since 2014 and receive a salary for my role as a speech-language pathologist. | Kaylee Paulsgrove is a member of ASHA’s Special Interest Group (SIG) 5 and is an appointed member of SIG 5’s Professional Development Committee. She is also a member of ACPA and serves on the Learning Resource Committee and 22q SIG. She is a Washington Speech Language Hearing Association (WSLHA) Board member and serves as the Clinical SLP. |
Marcia Rosario | Pérez Dosal | Marcia Rosario Pérez Dosal serves as a research consultant for the Mexico, Central America and Caribbean region for Smile Train and receives compensation for her consulting work. | |
Grace | Peters | Grace Peters is employed as a programs associate for Smile Train. This is a paid position. | |
Dale | Podolsky | Dale Podolsky was the founder of Simulare Medical Corporation. He no longer holds shares in the company after its acquisition in November of 2020. Dale Podolsky remains as a board of directors of the Simulare Division of Smile Train. | Dale Podolsky was the founder of Simulare Medical Corporation. He no longer holds shares in the company after its acquisition in November of 2020. Dale Podolsky remains as a board of directors of the Simulare Division of Smile Train. |
Kerry | Proctor-Williams | Kerry Proctor-Williams is a member of the NOWS Research Working Group ,Johnson City, TN | |
Andrea | Pusic | I am a co-developer of the CLEFT-Q and receive royalties when it is used in for profit, industry-sponsored clinical trials. | |
Reza | Seifabadi | I have ownership in PediaMetrix Inc. and am an executive in the company. | |
Pamela | Sheeran | I work for the organization Smile Train | I work for the organization Smile Train |
Devin | Singh | Co-founder and CEO of Hero AI, a Canadian healthcare technology start-up focused on empowering patients and their healthcare providers with clinical automation using AI. | |
Chelsea | Sommer | I am a professor at Florida International University and I was a PhD student at the University of Utah funded by the CORNET grant. | I am the co-director of Leadersproject.org cleft palate education. |
Shadan | Tofighi | ||
Judith | Trost-Cardamone | Peterson-Falzone, S., Trost-Cardamone, J., Karnell, M., and Hardin-Jones (2017) The Clinician’s Guide to Treating Cleft Palate Speech. Elsevier. (Book Royalties) | |
Linda | Vallino-Napoli | I am employed by Nemours Children’s Health. | |
Karen | Wong Riff | I am a co-developer of the CLEFT-Q, EAR-Q, and FACE-Q Craniofacial Module and receive royalties if the CLEFT-Q, EAR-Q, and FACE-Q Craniofacial Module are used in for-profit studies. | |
David | Zajac | book royalties from Plural Publishing | |
Adriana | Zavalaga | Adriana Gabriela Zavalaga works as a Nutrition partner with Smile Train. | |
Linping | Zhao | Immersive Touch Inc. Chicago, IL. Stock Option. |