My wife Kristen and I have three children all born with complete unilateral cleft lip and palate; two daughters ages 21 and 20 and a son who is 12. Since the very beginning, over 20 years ago, we have relied … Read More
Laura Livingood, Care Club Member Testimonial
When I was 20 weeks pregnant, my husband Matt and I had our first ultrasound. Afterward the doctor said he did not get a clear picture of the baby’s face. He encouraged me to go to the hospital to get a … Read More
Andrew’s Update: Year Five
He’s five. My brilliant, beautiful, bubbly, bold, best-thing-in-my-world son is about to turn five years old. As his dedicated, loving (and extremely emotional) mother, it seems this birthday is hitting me more like a ton of bricks instead of just … Read More
Sarah’s Story
Although I was lucky enough to have countless physicians who went above and beyond the call of duty, I know how rare it is to witness what a “good doctor” should be. I am no stranger to the medical world. … Read More
Jeremiah’s Story
Jeremiah was born with a cleft lip and palate. We found out Jeremiah would be born with a cleft during my pregnancy. He is now a wonderful 6-month-old and has recently had his cleft lip repaired. Jeremiah is the reason … Read More
Riley’s Story
Our third child, Riley, was born in 2016 with a cleft lip and palate. This was discovered at his 20-week ultrasound, and we spent the next four months leading up to his birth researching and preparing. All of the unknowns … Read More
Mikah’s Smile
Mikah was born with a partial cleft lip in Utica, NY. We had seen the possible cleft on a 4d ultrasound. He was healthy and happy, and we loved his big smile. At 3 months old, he had his lip … Read More
A Shining Star: Part Two
I shared the story of my daughter back in 2018 and felt that it was time for an update. We learned of Vilija’s cleft during an ultrasound done at 19 weeks. My pregnancy had already been difficult, as I suffered … Read More
Craniofacial Acceptance Month: Payton’s Story
September is Craniofacial Acceptance Month, an opportunity to spread awareness for those with cleft and craniofacial differences. In honor of Craniofacial Acceptance Month, ACPA is sharing Payton’s story. Payton’s story was written by her mother, Jennie. Payton was born with … Read More