Mia was born with a unilateral cleft lip and palate in 2016. She is a bundle of energy and can spend hours drawing, coloring, painting, but most of all she loves gymnastics. Many people believe that kids like Mia only … Read More
Continuing to Shine Despite Obstacles
Vilija was diagnosed with a cleft lip and palate at 19 weeks gestation. She is now 19 years old and has undergone 10 surgeries with her most recent in 2015. She is currently preparing to undergo one final procedure—a rhinoplasty, … Read More
Bobby’s Story
Bobby was born five weeks early, and to our surprise, he was born with a cleft lip and palate. We were immediately transferred to the NICU at Hasbro Children’s Hospital to get the extra care he needed. Bobby stayed in … Read More
Mother Inspired to Help Other Children
My husband Kyle and I were delighted when we learned we were pregnant with our first child. At the time, I was a registered nurse working in the pediatric emergency department and I had just enrolled in school to become … Read More
Greg Bowden, Care Club Member Testimonial
My wife Kristen and I have three children all born with complete unilateral cleft lip and palate; two daughters ages 21 and 20 and a son who is 12. Since the very beginning, over 20 years ago, we have relied … Read More
Laura Livingood, Care Club Member Testimonial
When I was 20 weeks pregnant, my husband Matt and I had our first ultrasound. Afterward the doctor said he did not get a clear picture of the baby’s face. He encouraged me to go to the hospital to get a … Read More
Andrew’s Update: Year Five
He’s five. My brilliant, beautiful, bubbly, bold, best-thing-in-my-world son is about to turn five years old. As his dedicated, loving (and extremely emotional) mother, it seems this birthday is hitting me more like a ton of bricks instead of just … Read More
Sarah’s Story
Although I was lucky enough to have countless physicians who went above and beyond the call of duty, I know how rare it is to witness what a “good doctor” should be. I am no stranger to the medical world. … Read More
Jeremiah’s Story
Jeremiah was born with a cleft lip and palate. We found out Jeremiah would be born with a cleft during my pregnancy. He is now a wonderful 6-month-old and has recently had his cleft lip repaired. Jeremiah is the reason … Read More
Riley’s Story
Our third child, Riley, was born in 2016 with a cleft lip and palate. This was discovered at his 20-week ultrasound, and we spent the next four months leading up to his birth researching and preparing. All of the unknowns … Read More