Category Archive

Jeremiah was born with a cleft lip and palate. We found out Jeremiah would be born with a cleft during my pregnancy. He is now a wonderful 6-month-old and has recently had his cleft lip repaired. Jeremiah is the reason … Read More

I was born with Treacher Collins Syndrome, a complex craniofacial condition that causes facial malformations. For a long time, I felt trapped by my struggles, but now, I use my voice to help others. As a craniofacial awareness advocate, I … Read More

By Tom TurbivilleCollege Station, Texas I was born in August of 1948 in Houston with a bilateral cleft lip and palate. There was no Dr. Google for my parents to answer their immediate questions, such as why their newborn son … Read More

Hi there, my name is Rasheera and I was born with 2 very rare syndromes: GoldenHar Syndrome and VATER Syndrome. Over the course of my life I’ve had 103 surgeries. Growing up and having such a rare condition, I didn’t … Read More

Hi, my name is Lilly Piazza. I grew up in southwest Louisiana and I am 49 years old. My story may be a little unique, because to be honest, I’ve never met or heard of anyone else with my type … Read More

I was born in 1983 with a cleft lip and palate. I, like all other children with this condition, went through many, many surgeries in my journey. What stood out to me, however, was the teasing of other children because … Read More

Growing up with Apert Syndrome, a craniofacial difference that affects 1 in 200,000 people, Nick Wiese often struggled to find his voice. Having experienced hurtful remarks from peers and numerous instances of bullying, Nick learned to keep quiet about his … Read More

“To all who currently have a craniofacial anomaly or are a loved one of such an individual, I would like to share my story. I was born with a unilateral right complete cleft lip and palate. Through the excellent care … Read More