Our third child, Riley, was born in 2016 with a cleft lip and palate. This was discovered at his 20-week ultrasound, and we spent the next four months leading up to his birth researching and preparing. All of the unknowns … Read More
Mikah’s Smile
Mikah was born with a partial cleft lip in Utica, NY. We had seen the possible cleft on a 4d ultrasound. He was healthy and happy, and we loved his big smile. At 3 months old, he had his lip … Read More
A Shining Star: Part Two
I shared the story of my daughter back in 2018 and felt that it was time for an update. We learned of Vilija’s cleft during an ultrasound done at 19 weeks. My pregnancy had already been difficult, as I suffered … Read More
Craniofacial Acceptance Month: Payton’s Story
September is Craniofacial Acceptance Month, an opportunity to spread awareness for those with cleft and craniofacial differences. In honor of Craniofacial Acceptance Month, ACPA is sharing Payton’s story. Payton’s story was written by her mother, Jennie. Payton was born with … Read More
Dean’s Story
Hi, my name is Dean Olsen Rorabaugh. At 23 weeks gestation, my mom found out I was going to be born with a unilateral cleft lip and palate. At first, her and my daddy were really worried about me and … Read More
Coming Soon: Abstract Submission for ACPA’s 78th Annual Meeting
ACPA will begin accepting research and clinical innovation abstracts for ACPA’s 78th Annual Meeting this week. All presenters who were accepted for the 2020 meeting are encouraged to resubmit. ACPA’s Annual Meeting is the most comprehensive event for cleft and … Read More
A Tradition of Giving Back
At 20 weeks pregnant, we found out Nicholas was going to be born with cleft lip and palate. While the journey has not always been easy, our ACPA Approved Team at Children’s Hospital of Philadelphia has made a big difference. … Read More
Grace’s Story
Grace was born with Pierre Robin Sequence–a recessed jaw creating a small airway and a cleft of the soft palate. She also had a unilateral cleft lip as well. She had trouble breathing and eating and had severe obstructed sleep … Read More
Brandon Willis Jr.
My third born child and first son was born with a bilateral cleft lip. I found out about his potential cleft five months before he was born. I had a sense of hope after family members, and even local ultrasound … Read More