Extra-Clinical Care

As cleft and craniofacial care providers, much of our interaction with patients and families occurs during clinical visits, check-ups, and consultations. These clinical sessions provide a crucial opportunity to answer patient and family questions, discuss treatment options, and plan for patients’ future healthcare journeys. But what happens when the clinical appointment ends? How can we, as care providers, maintain and strengthen our connection with patients after their visit is over?

Join us at this year’s ACPA Pre-Conference Symposium (Tuesday, March 29 from 9:30 – 4:30 CST) to explore the topic of Extra-Clinical Care, moderated by Amanda Smith, RN, BSN, Nationwide Children’s Hospital. You’ll hear from a variety of ACPA members and cleft/craniofacial care providers as they provide strategies for connecting with patients and their families outside of clinical hours. Presentations will focus on methods not just for broadening and deepening the connections between patients and their care teams, but also for building a sense of community and comradeship among those we serve. Attendees will walk away from the Symposium with new tools that can be applied at their own institutions to help strengthen the bonds between the care team and the families they work with.

2022 ACPA Pre-Conference Symposium Schedule 

  • 9:30am: Eric Hubli, Camila Osorio, and Grace Peters presenting on At Home Psychosocial Support for Cleft Lip and/or Palate Families Around the World
  • 10:30am: Jamie Idelberg presenting on The Sharing Circle – An Enrichment Activity of the Camp Experience
  • 11:30am: Lynn Grames presenting on Partnering with community providers: easing the burden of care
  • 12:30 – 1:30: Lunch break
  • 1:30pm: Dina Zuckerberg presenting on Developing Resilience through Social Stories
  • 2:15pm: Alexis Johns presenting on Adapting Craniofacial Social Support Groups for Telehealth