ACPA’s Care Coordination and 22q11.2 SIGs Have First Meetings

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The Care Coordination SIG, chaired by Iris Sageser and co-chaired by Jo Artz, began the meeting by introducing all first-time attendees. Then, they held roundtable discussions of several topics:

  • At your institute who is the first primary contact that a woman with a prenatal cleft lip/palate diagnosis talks to? Who is responsible for the prenatal counseling?
  • Besides giving general information about the cleft condition, feeding, and treatment timelines, how do you help support the woman/couple/family to identify and work through the initial grief/loss?
  • What is the biggest challenge you have dealt with in the past year of your job?

Going forward, the SIG will focus on advocating for care coordination within ACPA, educating members on team coordination and care coordination, and networking.

The 22q11.2 Related Disorders SIG also met during the meeting. Chair Adriane Baylis and co-chair Oksana Jackson led roundtable discussions on topics including:

  • What are the challenges your team faces regarding management of behavioral, cognitive and mental health concerns in the 22q11DS population?
  • What are the current challenges you/your team faces regarding airway management, including obstructive sleep apnea, if children with 22q11DS?
  • Does your center have a formal 22q Team/Center? If so, how does it work (team members, logistics, setting, number of patients seen, how is care coordinated, etc.)?

The SIG also discussed management of VPD in 22q11DS by sharing highlights of the roundtable discussions, identifying potential professional education, research, or other initiatives to address needs.

Both SIGS are open to all ACPA members, regardless of discipline. All ACPA members are eligible to join one SIG. The SIGs will meet for the first time at ACPA’s Annual Meeting in Colorado Springs, March 13-18, 2017. The meetings will take place during the Discipline and Special Interest Group Discussion Forums on March 15 at 3:00 PM.

If you would like to join one of the SIGs, please send us an email.