The American Cleft Palate Craniofacial Association (ACPA) and Cleft Palate Foundation (CPF) are featured in the November/December 2016 issue of Success by Association. The article, part of the Associations Giving back section, highlights how the organizations work together to put patients first through optimization of care and a comprehensive approach to education.
Success by Association is a publication of the Association Executives of North Carolina. Here is a brief excerpt from the article.
“Is there free surgery available for my grandson? He is now eight years old. His nose is very deformed and his teeth, those that he was able to grow, are coming out of the roof of his mouth. He can barely chew. Also with his smooshed nose he has trouble breathing at night. My daughter has no insurance, and the last time she did have insurance, they called his surgery ‘elective’ or ‘cosmetic’ and would not cover it at all. His inability to breathe and eat properly may seem horrendous, but the teasing he’s getting at school sometimes feels worse. Can you help us?”
Michelle contacted the Cleft Palate Foundation (CPF) in 2014 seeking help for her grandson, Avery, who was born with a bilateral cleft palate. Like many caregivers navigating years of clinical treatment for a child’s cleft and craniofacial conditions, Michelle and Avery’s mom, Eliana, struggled to find the resources to pay for his much-needed surgery, and they turned to CPF and the American Cleft Palate-Craniofacial Association (ACPA) for help.