Spreading Awareness, One Person at a Time

Hillary JonesACPA News, Awareness, President's Letter

Amelia F. Drake, MD

I am so excited that ACPA is participating in Cleft and Craniofacial Awareness Month again this July. This is a great time for ACPA—and for all of us—to think about how we can encourage awareness of cleft and craniofacial conditions.

I’d like to encourage all of you to find unique and relevant ways to build cleft and craniofacial awareness in your local communities this July. ACPA will share patient and family stories and reach out to our local community to share the message, and we need your help to reach an even bigger audience.

Here are some ideas of ways you can get involved:

  • Work with your treatment team to hold an awareness-building event in your community—a picnic, party, or even a reading at a local library.
  • Ask a local newspaper or news station to feature someone in your community with a facial difference. If your community is hosting an event for Awareness Month, request local media coverage.
  • Write to a state or federal representative to advocate for cleft palate/craniofacial patients and insurance legislation to cover treatment costs. ACPA can share information with you to heighten their awareness of medically-necessary cleft and craniofacial care.
  • Seek out a local support group and get involved, or consider starting one in your community. Many support groups have moved online, so look for conversations or groups where you can contribute a positive and informed perspective.
  • Request official acknowledgement of the awareness month from your local government. Here’s a sample proclamation from the Mayor of Chapel Hill, North Carolina declaring July as Cleft & Craniofacial Awareness Month.

Whatever you decide to do, we hope you will tell us all about it! Email ACPA information about your event and your photos, and we’ll spread the word.