Two-thousand-eighteen started strong for ACPA – we are continuing our programs and services with an eye toward celebrating our 75th Anniversary throughout the year.
With the ongoing strength of Wonder at the box office, we secured an interview on Morning Break, the CBS Charlotte affiliate morning news program. I joined Morgan Weintraub, the 15-year-old who was part of our pre-movie conversation, to discuss her experiences with a facial difference, how ACPA supports patients and families, our Wonder screening event, and the #ChooseKind movement. It was a powerful opportunity to shine a light on those in the US with facial differences and talk about how we work with our members to support patients and families.
Last month, I had the opportunity to see teams in action – visiting two ACPA Approved Teams: Barrow Cleft and Craniofacial Center in Phoenix, AZ and the Craniofacial Center at the University of Illinois Hospital and Health Sciences System in Chicago, IL. Every time I visit an ACPA Approved Team, I learn new or different aspects of team care. At Barrow, I joined the team for “baby day.” When babies are evaluated, feeding coaching is provided, and nasal taping may occur.
While at the UI Craniofacial Center, I had my first chance to meet with an anaplastologist and an engineer who also work with the team. Each of these teams shared with me the robust community-based outreach that they do, reminding me of the family aspect to the care we provide.
It was exciting to share that we will be providing ACPA Approved Teams with an ACPA Team Kit to help teams explain what it means to be an ACPA Approved Team. We plan to send these out in the first quarter of 2018. It is our aim that you will find this a valuable tool that compliments your own patient materials.
Finally, December was a strong month for the merged organization – with donors choosing to make year-end gifts to support ACPA. Many of these gifts are from members, while a number of them are from other supporters who may be individuals affected with cleft lip and palate or know someone who is. We have been humbled by the generosity and share our gratitude with those who choose to support the organization.
We will be celebrating ACPA’s 75th Anniversary all year, beginning with the debut of the 75th Anniversary logo on the ACPA homepage. Please keep an eye on our blog, social media, and emails for more 75th activities. Thank you, and Happy New Year!